Since December, since Montana, since hair and energy and a new year, Val has been doing great. Or so it appears from my (front row, but still audience) vantage point. She sings silly songs in the mornings, she styles her thickening hair into tiny swooshes, she’s making music and thinking about art and bringing home the bacon. She’s social and funny and hopeful about her wide-open life.
Sometimes her back hurts, as she gets more and more active and her body works out its kinks. The trial drugs she’s on make her nose bleed a smidgen – only when she blows her nose, the way you get when the air’s dry for too long. Surprising things can bring on mini trauma flashbacks (for both of us, actually), like the smell of the hand soap in the kitchen (I donated it to the office). There are little cameo appearances of fear.
But mostly Val seems fine. Happy. Even great.
I, on the other hand, seem to have fallen down a well.
My theory is this: after more than a year of worsening anxiety — beginning with my dad’s liver failure and transplant, and going through Val’s diagnosis and treatment — things are beginning to look up. My dad’s doing great (I’ll tell y’all that story another time) and Val’s really beginning to feel well again. For the first time in a long time, it is not absolutely necessary for me to cope.
And so I’m not.
Coping, I mean. I seem to be all coped out. As Val began to feel better in December, I began to feel worse. Moody. Teary. A headache that wouldn’t quit. Driven to prostration by simple things like taking the recycling out or returning phone calls. Just before Hanukkah and Christmas I caught a crummy cold, my first one in a year. I snorfled and slept and hacked and when it was all over, I felt worse than ever. Couldn’t stop crying. Couldn’t write. Surviving on one-stop concoctions like steamed kale, eggs from my chicken friends and the weird cereals Val’s been bringing home from the organic surplus market.
I felt boneless with despair.
This has never happened to me before.
I’ve been gloomy, I’ve been depressed for weeks at a time, I’ve been pissed off or premenstrual or seasonally-affected. But I’ve never come completely unstrung. And that’s what the last few weeks have felt like.
There were stretches where I could function okay. I was able to ask Val, my family, a few friends for help. Folks had me over for dinner. Sent me a mix cd from far away. Walked with me and talked with me. Val rubbed my head and danced silly dances for me. I made sure to eat, sleep, walk the dog and myself, get out into the world. I’ve been trying to keep in the swim of things. And I sleep in, watch back-to-back episodes of 30 Rock, stay up late reading: whatever sounds comforting. I’m being kind to myself. And I’m trying to be patient with my own breakdown. I’m trying to make room for grief. Not that I seem to have a choice.
I think this collapse of sorrow has been waiting for a long time till it was safe, and now that it’s convinced I’m off-duty it’s washing me away for a while. I think it will ebb. But I don’t seem to be able to gather it up myself, corral it in the bathtub. It’s too big and permeating and trickling out of all my cracks.
There is something confusingly translucent about my role in this blog-story. Am I chronicler of Val’s well-being, or is my voice my own? Am I telling/living my story, hers, ours? If Val’s got hair but I’m falling apart, and all you beautiful people have been helping us and listening to us for months… I’m not sure how to ask for help. Or what help to ask for. Or where.
For months I’ve been meaning to write a post about the densely layered nuances of help: asking for; accepting; offering; declining. Really truly needing. Etiqutte of; fear of; direction of; serendipity of. Its implications, grace, magic, mysteries. It’s too much. I haven’t been able to tackle it yet. My sister, Abby, lived in New Oreleans until she was Katrina’d out. She is still untangling her experience of help and loss and community in all their myriad meanings; it will be the heart of her MFA thesis show this spring. Art transmogrifies. I am glad to be writing tonight.
And there has been sun this week, actual Portland winter sun. The messy fog of grief, exposed to air for the last couple weeks, is patchily beginning to disperse. Small things seem mostly do-able again. And the fabulous Tuley still makes me laugh out loud.
I’ve been listening to a lot of music lately. In the land of Facebook I put up a question yesterday, and I’ll ask it here too. What music do you listen to for rescue? When you have the blues, what songs reach your heart? One person answered that it depends on the type of blues, and of course that’s a vast and varied territory. But I’m interested in all answers: Music that touches the raw nerve and echoes the exact melancholy you feel. Music that rocks you and croons in your ear, reminding you of summer sunlight. Or songs that flip off the sorrow and get you dancing around the house. Any of it. What’s your musical snake oil of choice?
Thanks for listening. It helps too.
Deborah
p.s. In case you were wondering, here are some of the songs or musicians that help my Facebook friends dance with the blues:
- Amos Lee, Joshua Radin, Gary Jules, Patty Griffin, Govinda, Buena Vista Social Club…and the Jackson 5, to name a few.
- I like Alanis if I’m pissy AND sad and I still resort to musicals sometimes. Evita is a favorite.
- Radiohead’s “Hail to the Thief” always makes me glad I’m not as depressed as Thom Yorke!
- Jack Johnson is always a sweet one. Lunasa has been a favorite lately, too.
- Pink Martini – Let’s not stop falling in love and Hang on little tomato
- It really depends on the depth & quality of the depression…
Indigo Girls – Tangled Up In Blue
Michelle Shocked – Anchorage
Coyote Shivers – Sugarhigh
Ben Folds Five – Rockin’ the Suburbs
Pink – Trouble
Scissor Sisters – Take Your Mama Out
The Subdudes – Papa Dukie and the Mud People
Mike Doughty – 27 Jennifers
The Grateful Dead & Jimmy Buffett – Just about anything… - Any of my favorite 80s dance songs for dancing around the house. it can change my mood instantly
- Rodrigo y Gabriela
- Toots and the Maytals always makes me smile and shake my bootie:)
- The Blues are the perfect antidote for well, the blues.
- the music list is immeasurably extensive however, jeff buckley (for everything), patty griffin (comfort and 1/3 sorrow), lhasa de sela (for magic), dead can dance (for vitality, spiritual attunement, + rhythm), senayit (passion, a dose of magic, truth, fire + magic), pj harvey (for power), daniel lanois (for alignment in the etheric + astral body), wolfsheim (my love affair with gay german men 😉 boards of canada (digital electro subtle beats), faryad masters, nustrat fateh ali khan, & gregorian chants (to remember), bon hiver (for allowance), beirut & devotchka (to create new shape), kate bush & andrew bird (to understand the space and relationship between two points).
Cowboy Junkies (any of the early stuff – later stuff is heavier, stronger guitar)
Sade – King of Sorrow
Mercedes Sosa – Gracias a la vida, Vengo a Ofrecer mi Corazon
Guadabarranca
The Sundays – Wild Horses, I Feel Fine…
Natalie Merchant – Trouble, Verdi Cries…
Cocteau Twins (lots of songs, very full emotional sound)
Jane Siberry (Maria is a good album for feeling better – others are better for lamenting)
Lucero – (Rancheros album – very emotional, good for belting out you’ve been done wrong)
Los Panchos (very old music)
Billie Holiday
and if it is angry noise that is needed, I usally go for Garbage
I’m glad that you are washed away – staff safe as you get drenched. Sending love,
Roz
I find that happy music does nothing for me when I’m not happy. When I’m way down I listen to really hard, true stuff like PJ Harvey’s “To Bring You My Love” album (mostly for heartache) and Radiohead’s “OK Computer” and “In Rainbows.”
Deborah, good for you for telling us how you are doing. The care taker needs just as much help as the person going through trauma. Hell, even FEMA knew that and offered resources for those who took us katrina folks in. I hope that you get more help than songs, people tell you how much they love you. I love you tons. I think you are the best big sister ever! I hope people bring you food when you can’t deal with cooking for yourself. I hope they call you and invite you out for milk shakes and only twelve minutes into the conversation, as an after thought, ask how Val is doing, because they are concentrating all their energy on you. I wish for someone to send you a tiara so you can be queen for a day and the whole world will know it. I think you have held up remarkably and you deserve some down time. I hope someone else answers the phone and rakes the yard, and that the weather gods give you a blazing sun that warms the toes and says for a week, enough to remember that you get crocus while we get icy blasts.
I love you so much.
As for music, when I am feeling down and frustrated with myself for not doing anything (which happens when I am depressed) I listen to Mary Chapin Carpenter’s – I Take My Chances, which always reminds me how good it is to be alive. Likewise Dixie Chicks – Wide Open Spaces.
Violent Femmes, for when I am really down.
Hedwig and the Angry Inch is good for most things. Slow and moody just makes me feel worse, though a little Depeche Mode can do wonders for the general aura of angst.
So there is my list.
I sure do love you, Deborah and I think you are an absolutely wonderful human being.
Hey Deborah! I can’t tell you how much I appreciate all your hard work on my little sister’s behalf. You are a godsend and I hope you’re told that daily. What you’re saying really rings a bell with me because whenever one of my kids needed some type of surgery or stitches, I was very strong up until all was done and then I got weak in the knees and felt like I was going to fall apart. My favorite type of music is the stuff I listened to as a teenager. It always takes me back to a time when things were different (sometimes better and sometimes worse). Because of my “advanced age”, they’re now referred to as “oldies. Just know that you’re loved and thought about daily!
Hi deborah –
Big hug from SF.
“Everything I need” and “welcome to my life”, melissa ferrick
“The middle”, by jimmy eat world
Much love to you!
Chris
Sometimes I just can’t listen to music cause it has such a strong pull. And frankly there are days when I don’t wanna get yanked around by anything.
Last year, Bon Iver, put out this terrific record. For Emma, Forever Ago. It was so sad and beautiful. So poetic and melodic. I listened to it a lot.
There is a great cover of the Flaming Lips “Feeling Yourself Disintegrate” and it might resonate with you.
When I feel bad and want to feel better I go with “Hammer and a Nail” by the Indigo Girls. When I feel bad and don’t want to feel better then I like “Another Man’s Done Gone” off of the Mermaid Avenue album with Billy Bragg and Wilco. Though Cowboy Junkies are good too.
from classical person:
The Lark Ascending by R. Vaughn Williams
2nd mvt to Mozart’s clarinet concerto
-mari