A week ago I came in from taking out the compost to find a message on the answering machine from Dr. T., the oncologist: “I’ve got some new information about the clinical trial you’re on; give me a call this morning so I can fill you in.”
Apomab
an informative post
Dear all, Somehow daily life is so absorbing and tiring that we haven’t managed to bring people up to date. I’ll try to write a juicier post soon, but until then, here’s the basics: Val is slowly recovering strength and verve. It’s funny how we can be simultaneously so grateful Continue Reading
a bit of excitement
Hi all, We’re fine. Which is so exciting, because Thursday night fine was only one of the options on the menu, and it wasn’t clear for a while there what we were ordering. Here’s a quick, damn the suspense and full speed ahead rendition, to be fleshed out later when Continue Reading
the stranger becomes familiar
It’s so different now, entering the chemo world. At the beginning, in June, we were crashing along in the dark, trailing our abraded fingers along the cold stone walls, straining to hear every sound, trying to get oriented. There were words words words pouring over us in buckets, menacing and Continue Reading
Apomab redux
One other tidbit this week: turns out we’d been given incorrect information about the Apomab drug trial ditching the placebo. This week (with some chagrin) oncology staff let us know Val’s Apomab trail is unchanged, and half the participants will still receive a placebo instead of the drug, although that Continue Reading
Oh! One other thing!
As a postscript to our most recent hurried conversation, Val added this tidbit from TerriSue: Apparently the Apomab people – that’s her trial drug – have decided to ditch the placebo part of the trial and give everybody the guaranteed real deal drug from here on out!
Shadrach, Meshach, and Abednego
This will be a quick and informational post, with details and impressions to follow: We met the medical oncologist today, Dr. L, and I’m happy to report she struck us as sharp, personable and committed. She was patient with our questions and, like us, interested in pursuing aggressive treatment. (She Continue Reading